A True Story of Balancing Loss and Life With Dementia

Featuring Romeo and Juliet Archer

We invite you to participate on this blog with us.
Please join the discussion, add comments,
ask questions.
Above all, sweet souls, learn and grow in love with all your being.



Showing posts with label phone call. Show all posts
Showing posts with label phone call. Show all posts

Saturday, September 4, 2010

A Caregiver in the Middle

It's 10:00 a.m. and the phone rings. It's Romeo's nurse.

"Have you talked to Romeo today yet?"

"No, why?"

"Let me tell you what happened last night."

Dear lord, now what, I think. The story unfolds. From his bed, Romeo was banging on the walls, as usual, and yelled and screamed until someone came to help him. Of course he mistakenly thought his call light had been on for 30 minutes and that no one had answered it. When someone came, he let loose with his now usual round of name-calling and anger and frustration. And it took some time to calm him down, again like usual.

He insisted that he had been left in the shower and couldn't get anyone's attention to help him get out. He claimed he was abandoned in the shower -- all the time while he was actually tucked into his own bed.

Not really believing it, I asked Romeo's nurse, "Someone was giving him a shower at 3:00 a.m.?"

"Not that I know of," she said. "We don't do that in the middle of the night. But I'm going to investigate it just to be sure. If someone did leave him in the shower, they're in big trouble. I just wanted to let you know in case he tells you about this."

Fair enough. I cherish open, two-way communication.

A few minutes later, the phone rings. It's Romeo. He had told his nurse that he wanted to speak with me, so she dialed my number for him. The purpose of Romeo's call was to tell me about his shower ordeal the night before. It was the same story his nurse had told me minutes ago. I agreed with Romeo that yes, it was horrible that he was abandoned in the shower, that I would talk with his nurse about it.

Then Romeo complained again about how no one answers his call button during the night. For all the times Romeo has voiced the unanswered call button complaint to me, he has never once told me why he summoned help.

"Romeo, when you press your call button during the night, what do you need? What do you need help with?"

"Pain," he says.

"Pain? What kind of pain, where?"

"In my ankles."

This is the fist I'd heard from him of pain during the night.

"How bad was the pain and how long does it last?"

"Pretty bad. It goes on for hours."

"Does this happen every night, pain in your ankles?"

"Yes," he says.

"Okay. When we're through talking, I'm going to call your nurse and see if she thinks it would be a good idea if they gave you something for the pain before you go to bed. That way it won't wake you up in the night."

"Oh, that would be good," he replies with a smile in his voice.

We hang up, and I call back to speak with Romeo's nurse. I tell her the latest about the ankle pain. It's news to her as well. She agrees to give him ibuprofen at bedtime.

I ask, "Do you think that the ankle pain is due to Romeo's dementia, or might there be an actual physical reason for it?"

She refers it to Romeo's doctor, who will check it out.

It seems to take the two of us to squeeze a story out of Romeo, to find out what's bothering him. She has a fact or two, and I glean an additional clue or two from him. Then we talk and figure out the best thing to do for Romeo in that case.

As far as Romeo being abandoned in the shower . . . well, of course it did not happen. But what I told Romeo was very different from the truth. I told him I was as frustrated and angry as he is that this happened. I told him I was at a loss as to what to do about it. And then I "thought" of a solution. I offered to take the matter up with one of my spiritual advisers, and Romeo thought this was a splendid idea. I agreed to do it, hoping all along that Romeo would forget about it, that it would drop off of his radar, never to be mentioned again. So far, so good.

Wednesday, August 18, 2010

Pre-Dementia Romeo Calls From the Nursing Home

It's near bedtime, and the phone rings. It's Romeo. Again, he asked one of the nursing staff to dial my home number. He hasn't been able to dial a phone for two years or so.

"Is everything okay?" I ask.

"Yes, everything is fine." His voice is clear. There is no hint of brain fog.

"I just wanted to hear your voice," he croons into the phone.

This is the Romeo who first wooed me. This is the Romeo whose voice is clear, confident, in charge, sexy. This is the Romeo I haven't heard in a very, very long time. It is the alpha Romeo with the sensitivity and the presence of a god.

"You sound great," I say.

"Do I? I don't feel any different."

"You sound like the Romeo I met five years ago."

There's a smile in his voice. "Really?

"Mmmmm."

We chat for 15 or 20 minutes. I soak up every bit of him that comes through his voice, his clear voice, his amazingly clear voice, his voice talking to me right now. I'll remember this call always. The night the old Romeo called. The night the old Romeo called because he wanted to hear my voice. The night the old Romeo spoke as the clear-headed, unfoggy Romeo.

Eventually, we hang up. Romeo, still the old Romeo, goes to sleep in his bed in the nursing home. And I fall asleep in my bed in my home, smiling, remembering.

Tuesday, August 17, 2010

Sleepless in the Nursing Home

The phone rang at 10:00 a.m. It was Romeo. He had asked one of the nursing staff to dial my home number. He wanted to talk with me.

"Hello?"

"Juliet, I couldn't sleep last night."

"What was wrong?"

"They put me in a very small bed. It was too small for me, and I was scrunched up and couldn't get comfortable. I didn't sleep all night."

I considered Romeo's complaint. Hmmm...all the beds are the same size, the standard twin. Romeo's information is incorrect, and he can't think things through to make sense of the fact that
the nursing home wouldn't have a bed smaller than a twin size. He can't think to recall that the bed he slept in last night is the same bed he's slept in since he moved there.

"Romeo," I said, "I'm sorry you weren't comfortable. Are you in bed now?"

"No, I'm in my wheelchair."

"Good. Are you comfortable?"

"Yes."

"Okay, that's good. Do you know what I'm wondering?"

"No."

"I wonder if last night you were scrunched up toward the bottom, toward the foot of your bed and that's why you weren't comfortable?"

"Oh, yes. Yes, that could be it."

"Yes, it might be what happened."

But Romeo is still in the habit of telling all of his complaints to me instead of the nursing staff, the people who are there with him and who can help him when he needs it.

I continued, "Romeo, whenever you need something or whenever you're uncomfortable, press your call button. When someone comes, tell them what's going on with you. They'll do whatever they can to make you comfortable."

"Oh, I see."

"So if you had pressed the call button last night when you couldn't sleep, someone would have come and helped you to get comfortable. You would have been able to sleep then."

"Oh, yes. Okay. I'll do that next time."

Will he? Will he remember?

Friday, July 23, 2010

A Call From Romeo in Dementiaville

My cell phone rang, and I didn't recognize the number on the caller ID. "Hello?"

"I love you."

"Romeo?"

"Yes...I love you." His voice broke, as if he were about to cry. I was concerned.

"Are you okay?"

"Yes...I love you."

"Oh, my sweet man."

"And I want to tell you something else. I want to tell you, Juliet, that I love you inside and out." Another break in his voice, caught up with emotion. "Where are you?"

"I'm waiting for the SUV. It's in for an oil change."

"Oh."

"I'm coming to see you after it's done."

"Oh. The reason why I said I love you inside and out is because..."

More cracks in his voice, emotions seeping through, and now my eyes wet.

"...you know that I love who you are as a person, the inner you."

"Yes."

"But I also want you to know that you are beautiful on the outside, too. I love you."

Tears from both of us now.

"Romeo," I said while laughing and crying at the same time, "do you think we'll ever be able to tell each other how much we love the other without crying?"

"No." Laughter and tears from him now. "I'll see you in a little while, then?"

"Yes, Romeo. In a little while. Until then, I love you."

Laughter now from the both of us. Laughter and love, from the both of us, to each other.